Showing posts with label medical. Show all posts
Showing posts with label medical. Show all posts

Saturday, October 27, 2012

Oct 20–Oct 26 ~ Update on Mom/Grandma

Saturday ~ Last week was very hard on Mom/GrandMa, physically & emotionally. She has eaten a bit, but is using the time to rest. She is going to church with her Dad, he is all excited about it ... which makes her happy. It was going to be a surprise, but she felt like she had to give him something positive instead of “bad news” about her. It made them both happy, and that I am grateful for. Also, Cathy & Mike McA stopped by, which was great for Mom. They had her laughing, which is something we have not seen in days. She is always grateful for visiting family & friends, they help her more than they can imagine.
Even though this last week has been tough on Mom, she has been trying to make each day a good day. She has goals that she is trying to make. When she hit’s those goals, she makes another. That is the best thing for her to do right now. This coming week she is kicked into surviving long that the docs gave her. Her quote “I AM A SURVIVOR”

Sunday ~ Today Mom went to church with her dad & sister, Karen. She enjoyed the service & seeing all the people she knew. But sadly, she was unable able to sit though the entire service. She was a little upset that they had to leave so soon. She received many well wishes and offers of prayer from the congregation. She sang, cried, and was simply grateful to be there with her dad ... it meant a lot to both of them.
But sadly, it seems that the rest of today she will be down. The trip & service where pushing just a little. She is still able to get up & move around, but mainly is resting because tomorrow is Chemo treatment.
Oh in case you didn’t notice, I am writing these day by day, instead of trying to remember everything at the end of the week.

Monday ~ Chemo did not go as planned. It would appear that the current treatments (2 different types of chemo) were no longer working. The cancer adapted to them. There is one more type of chemo they will start up next week. Mom will go in for 2-4 hours, for lab work & various other items (nausea meds, potassium, etc.). Then they will attach a pump to her for approximately 2 days. She will not have to sit through 8 hrs. of chemo each Monday. Right now, we are unsure if this is a weekly treatment or ever other week. I will let you know in the following update.
Mom was grateful for not having to go through chemo today. It was like she knew it wasn’t working the way they wanted it to. Plus it was completely wiping her out. She is up and moving today, which compared to this weekend, is simply amazing. She still has her sense of humor, because she found a way to joke & laugh when being teased. (Which do happen but with all the extra stress ... it’s not too often lately)
But keep in mind that there is no expiration date on her feet or any where on her body. She will do her best to keep fighting this ... but keep in mind, that eventually she will be worn out by the constant fighting. We all must be prepared for that day; whether we like it/don’t like it, or accepting it/not accepting it. Mom wants us all to stick together & remember her in the positives ways she tried to remember others.

Tuesday ~ This day was a day of resting. No appointments, no driving all over the place ... just a beautiful day to sit outside and enjoy it. Mom just loved it, because she didn’t have to wear a jacket or coat. The breeze was one of those “just right” types. Not too cold or hot. Simply a beautiful day.
Karie O stopped to see her big sis, and she brought a lovely floral plant ... it is beautiful. Plus she gave Mom a figurine with a scarecrow that has “Autumn” on it. Mom really enjoyed see her sis, they talked for what seemed like hours ... I think it was good for both of them. (Thanks Karie for coming by)
Later that night, Mom read the info on her pending Chemo. She talked to Dad & I about it, told us it’s there when we want to read it. Plus she told us how she felt after reading it. I think it did her some good to have some idea as to what they are giving her. She will be Folfox, you can look it up online to get more info ... otherwise this email would be pages long Smile

Wednesday ~ Not much happened today. It was more of a resting day. Mom is trying very hard to prep herself for the Folfox treatment. Which means drinking ROOM TEMP beverages, bundling up .... down that line of thinking. She is just trying really hard to get read for this treatment pending on Monday. But she is so grateful that Dad, Karyl W & I will all be there, this way all of us know about the pump. She is gonna talk to her other siblings to see if they would go to the following apt so they can learn about the pump, which will relieve her mind (LOL and give Dad & I a break Winking smile). I think it would be good for those who are local to go with her, they have been simply amazing ... and this way, they can ask the nurses & doc questions they may have. It has been so hard on everyone.

Thursday ~ Learning to bundle up isn’t not something Mom likes to do. Todays weather showed that .... but I will say she is trying!! Mom is still emotional about the passing of her brother. It is really hard on her siblings & herself, and it makes her want to fight even harder. Yesterday, I was a bit worried because it’s been a week since she found out, but she is slowly going though the “grieving process” ... it has been a hard week for all the siblings & her dad. I am just grateful it has pulled them closer together.

Friday ~ Started off bad, but Mom decided it would be a good day no matter what. Her sister, Karen L, stopped by ... she really enjoyed that time. Yea, I think they talked for hours, even though it wasn’t actually that long Winking smile. It was ups & downs all day, but Mom worked really hard on keep her head up & enjoying the cold weather.
Her eating has gotten a lot better. And she is working to prepare for the new chemo on Monday. She has to learn to bundle up because of possible nerve damage. But with the loss of her brother, she is determined that she will be here for a while ... Go Mom!!!!

Friday, January 21, 2011

My poor husband

Yesterday my husband spent so long in the ER. They ran test, after test, on him. But they would not release him because his blood pressure was severely low. Plus he has pneumonia, and they could not give him any form of meds unless he was watched. That is when they secured a bed for him, and transferred him to the upper floors.
They did breathing treatments all night & morning with him. I know he didn’t get much sleep, so I won’t take our kids or granddaughter up to see him. I want him to rest, and he cannot do that with us in there. Yes, that seems harsh but I want him to recover & come home soon.

My husband looked at me yesterday and said "How do you feel when the shoes on the other foot?” I just smiled at him. Because until last night he didn’t grasp that idea. Then he wasn’t enjoying have made that point. They have been running test after test on him, blood, CAT, Ultrasounds, urine, sputum … all those tests that make you feel horrid when they appear. Even worse when they let you know those didn’t give any results, which means MORE tests.

I never wanted my husband to have to go though this. He’s always so healthy, and this has to be so hard for him. I know it is, because he keeps asking me how I am doing. Hello, I am not the one in the hospital!!! It’s hard, extremely, because you are stuck with dr’s deciding what to do with you. “no this test was ok, so we are gonna run these now instead” Leaving you with the thought “why didn’t you just do it the 1st time?” Dreading seeing the nurse, tech, or dr. Wanting to just pack up & leave … letting them find someone else to test or diagnose.

Saturday, January 15, 2011

Still alive & breathing

original post date: 11/10/10

Yep we are still here, breathing & alive. My daughter moved out, my son has an interview at Hot Topic & he is engaged, my second son is getting promoted, and youngest son is getting enrolled in a school better suited for him.
The best news …. My husband is retiring! Check that, he’s putting his paperwork into retire. It’s good by Army, hello Civvies World. LOL funny to say seeing that I am living off base already. But this will be great, not to have to attend FSG meetings or battery events. Not have to worry if what is happening in our family is disturbing his COC. (when you have several medical appointments a day for 3 weeks … they tend to get rather annoyed)

I have gotten back into life since I went on vacation. I am learning that being a grand mother can be amazing fun. I have two little ones to pay with silly toys, sing songs & just dance all over the house. I play on the equipment at the park with the oldest, and rock the youngest to sleep. I get to eat with my fingers at dinner, getting the oldest to try new things & learn to enjoy what you have. Stories, songs, walks, naps (boy oh boy do I need those), playing with pots & pans … and that list goes on. It will be interesting as the youngest gets beyond the infant stage. But she still has fun, smiles & tries to laugh quite a bit.

Now I am just waiting for the clearance for my neck surgery. I think it will help so much with my migraines, and neck issues. Then I have to wait & get clearance for them to work on my back … he he he my kids said they should just take out all the bones & give me artificial ones. Yep I can see that happening, “ma’am we have decide that we are going to cut you from top to bottom taking out the bones on one side. Replacing them with these new artificial bones. Then we will close you up, and do the same to the other side. You will take 6 months to a year to recover. But we can discuss that after the surgery. OH  I think she is under, I hope she heard what I was telling her.” LMAO as if that will ever happen, 50 million dollar person … not!!! They had a great idea, something that has been made in to TV shows. Oh well, now it is time to wait …. hope for the best & expect the worst.
And yes, I am hoping they call & tell me my surgery is schedule in two weeks. So wait I will do.

The question of the day ....

original post date: 6/24/2010

I would love to have a week where I can do things & not crash. Before it wasn't too bad, I could do a bit but would crash for a say or two. But it has gradually gotten worse over the years.
Last month I was hospitalized because I was anemic and my heart rate was 41, with a dangerously low blood pressure. I scared everyone who loves me, and today they are still extremely worried.
5 or 6 years ago, this wouldn't have happened. Yes I was younger, but still I was able to do pretty much anything I wanted. This little stunt made sure I didn't go to the family reunion. And it pretty much has be locked in one area, travel is out of the question for me right now, at least with me driving.

I keep hearing from my docs "once this is done, it will you will be ok." Only problem is I have heard this over & over for the last few years. I have agreed to do what they tell me needs done, only to have another medical issue occur. Part of me wonders if I didn't do what they suggested if I would be going through all of this ... and that is disturbing.

Now I have to decide if I get a hysterectomy done, as well have the spine in my neck fused together. Yea that's just the easiest thing to decide isn't it? Or it would be unless you were dealing with me & all the blasted issues I have going on in my body. Heck only one issue laid me out for 2 days ... all I did was help tear out a small part of carpet from my own freaking room. 2 days later, I am still feeling the pain, and exhaustion. Let's not even discuss the problems my back says it is having ... it's very unhappy with me right now & letting me know about it.

The question is do I follow what my doc suggest or to I take a chance & end up screwed from not trying?

Understanding what you are going though ...

I have quite a few medical issues, they are issues because they can be (in my opinion) resolved. I have started to understand them, but not always like what is going on. Such is life, right?

Acid Reflux ... "GERD — or gastroesophageal reflux disease — is the medical term for acid reflux. And it can cause, among other symptoms, heartburn in the chest. Occasional heartburn can happen after a large meal or with foods you are sensitive to, but GERD is diagnosed when the burning happens frequently or even continuously."

Now when this happens, I am sticking my head in a FREEZER to breathe! Not joking, it as if I am breathing fire. I take nexium two times a day (plus carafate 3x), I have adjusted my eating. In other words, I don't eat what ever I feel like it. Ever eat taco's with out the salsa? or the season? Well they aren't too good, trust me. I don't make chili as often, cause I love it yet having acid reflux you don't want to love it too much. Chicken enchilada's ... oh they are amazing, but CANNOT have (that often).
It really is depressing when you get to enjoy life but not enjoy the foods. I love spicy foods, I enjoy things like chili, nachos, taco salads, enchilada's ... and I can go on & on, but the point? These are foods that I have had to limit or cut complete out. All because I have Acid Reflux from hades. But that brings me to the medical problem ...


Depression ... Depression is a serious condition that can impact every area of your life. It can affect your social life, your family relationships, your career, and your sense of self-worth and purpose. And for women in particular, depression is common.
If you’re feeling sad, guilty, tired, and just generally “down in the dumps,” you may be suffering from major depression. But the good news is that depression is treatable, and the more you understand about depression’s particular implications for and impact on women, the more equipped you will be to tackle the condition head on.

Oh they treat this, and with me it is a requirement. I have 2 meds that I take. I have come to understand several of the issues that occur with me when I am severally depressed. One is that I shop, I don't like shopping but boy can I do it. I can walk into a store & walk out with so much that I truly don't need. This can cause more issues that I need, after all we stick to a budget, and I do well at trying to but sometimes it just doesn't work that way.
I also get really bitchy. Although I have a reason to get angry, I can make the person I am angry at feel worse than you would ever want to or mean to. When this happens, I usually stay in my room away from people, and tell them to LEAVE ME ALONE.
Now do not get me wrong, I get angry at individuals if they have wrong me. But that is normal ... but when I can make a person feel worthless, well that is just the start of that effect.
I do not like being depressed, but unfortunately I don't have much control on that part. BUT I am learning to control my two "issues" when I get really down. Which does help with spiraling down that depression hole. It's nice to say I am working harder to control the effects, because that does effect the mood I have.
After all, knowing you made a person feel worthless ... does effect you. Makes you feel worthless for doing that to them. And over spending ... that just messes you entire day up. Other than those two main issues when I am in one of those moods, I always keep comedy videos on hand ... a great laugh always helps, more than you can ever imagine.


Ulcer ... An ulcer is a sore that forms in the lining of your stomach or at the beginning of your small intestine (duodenum). Stomach ulcers are called gastric ulcers and those in your duodenum are called duodenal ulcers. A more general term is peptic ulcer which refers to ulcers of the stomach and duodenum.

Let me tell you when you wake up in the middle of the night and if feels like you stomach is being torn out ... boy that really messes your entire week up. Problem is, I wake up like that 3 or 4 times a night. I take my meds, and they are GROSS. But I take them, I don't play games. I have even told my docs that I take them daily as I was told but there are times when I get up that I take them again, so that means taking them more than the 3x a day ... but they tell me "it's ok" (not in my book it's not).
This ties in with my acid reflux believe it or not. Because when you eat food with no taste or seasoning or mushy food ... well, get my point? Right now I am on bland foods. Great (if I could eat rice & bread ... but I cannot have those) right? Oh that should be easy to do ... NOT even close. I cannot have crackers unless they are mushy (oh how gross). Water, lots of it. Here's a list of what I cannot have: Popcorn, bread, crackers, rice, oatmeal ... those are bland but not something I can have.
So right now I do a lot of trial & error. I can have bean soup (great because of the proteins I need), baked potato (no butter, no sour cream, no toppings), instant mashed potatoes (no salt, pepper or seasons, no butter or sour cream), plain yogurt (no flavors at all), cottage cheese (plain nothing added).
Right now what I want is a steak, still a little blood in the middle ... seasoned with onion, garlic, pepper and cooked with a little butter. Oh that would be the next best thing in life ... CANNOT have it right now, after all you ever try to eat a mushy steak? (makes my skin craw just thinking of how nasty it will taste). So each day I learn this food is ok, but this one is not. Opps do not use this or that because it will make the ulcer worse, and that is a painful experience.


Gastric Bypass ... Gastric bypass surgery makes the stomach smaller and allows food to bypass part of the small intestine. You will feel full more quickly than when your stomach was its original size, which reduces the amount of food you eat and thus the calories consumed. Bypassing part of the intestine also results in fewer calories being absorbed. This leads to weight loss.

When you cannot work out because your cardiologist is worried about your heart (and it's issues), your neurologist has his stressed over it, and even your primary care doc is concerned ... it really makes loosing weight next to impossible. When you eat a little here or that but not a ton, but your doing much to contract the weight. I can go on & on about that, but here is why I ended up having it done: doctors would not approve exercise, I have a PFO (will discuss later), I was at an UNHEALTHY weight, my blood sugar count was too damn close to diabetes (that is major NO GO for me), I was having pain in my joints, my migraines were so severe that I was unable to do much for days at a time ... and that list goes on (according to my docs). So after refusing to do it the 1st time (boy did I piss of a group of docs) the second team came in & it was do it or suffer even more problems (boy did they have that f* up). So I had the surgery, and I have suffered dearly since.
It took me months to over come the 1st surgery. I was sore, in pain & learning what I did & did not like. My taste buds changed, there were foods I didn't like anymore & that I do miss. There are foods that I have found I like more than I did prior, but 2 or 3 spoonfuls is all I can eat. Let me tell you when you get sick, you do everything in your power to prevent it from occurring again. You get sweaty, nausea, dizzy, shaky ... you feel as if life is just gonna end. When you vomit it is painful, and you feel even worse when it over.
You find you have to rebuild that strength you had, lifting a simple gallon of milk can be painful. You start walking, but when you can only handle walking a block to & from your home, it makes you feel horrid. (specially when you love walking) You cannot do weights because you can rip open your stomach. Lovely thought huh? So you are simply stuck with walking, which eventually you can get back to where you use to be but NOT able to lift what you did in the past. You can start with weights after a few months, but you have to be careful. Anything that "doesn't feel right" should be stopped, and check on by a doc. (lovely huh?) Then once you are starting to get to were you can lift again ... oh now it's time to remove over 5 lbs of extra skin. This puts you back to square one ... pisses you off more than anything. You spent all that time recovering only to have it take away, and you put back were you have to take it slowly. You even have to be careful when you sneeze ... how freaking lame is that?
You go though this because your doctors said it would HELP. Boy have I had some things to say about that. Instead of "helping" it pointed out that the issues they said were from my weight were actual issues. This messes your entire day up each time you hear this, after all you went though this surgery because it was to help you resolved those other problems because they were "caused by the weight" (which was pretty much bull).
In the end, I have a smaller stomach (& small butt). I eat less, but I still have medical problems that were considered "from the weight" and are now being taken serious cause I am not "over weight" ... go figure.


PFO ... A patent foramen ovale (PFO) is a defect in the septum (wall) between the two upper (atrial) chambers of the heart. Specifically, the defect is an incomplete closure of the atrial septum that results in the creation of a flap or a valve-like opening in the atrial septal wall (see illustration). A PFO is present in everyone before birth but seals shut in about 80 percent of people.
With each heart beat or when a person with this defect creates pressure inside his or her chest - such as when coughing, sneezing, or straining during a bowel movement - the flap can open, and blood can flow in either direction directly between the right and left atrium. When blood moves directly from the right atrium to the left atrium, this blood bypasses the filtering system of the lungs (the lungs actually do dissolve tiny blood clots). If debris is present in the blood, such as small blood clots, it now passes through the left atrium and can lodge in the brain, causing a stroke, or another organ, such as the heart, eyes, or kidneys.
Now if you have ever watch your heart via an ultrasound, there is nothing like watching as bubbles pass though one wall to another. It's amazing and scary. When I saw this happen with my heart, I cried. I knew what could happen later in my life, and after what I went though already it didn't make me happy. The doc was great, told the nurses to leave, and said I could have a few minutes by myself to "get myself together" but there were a few more things they had to do before they were done with the tests. I went though this, & dealt with this ... but the harsh event hasn't happened. (I watch 3 of my children become diagnosed with the same defect, I truly lost it then. I sat in the hall crying, and being held my kids)
PFO doesn't effect a lot of your life but it does put some interesting issues on it. No scuba diving ... for obvious reason, bubbles could pass though one side to the other & pretty much kill you.


Stroke ... A stroke, or cerebrovascular accident (CVA), occurs when blood supply to part of the brain is disrupted, causing brain cells to die. When blood flow to the brain is impaired, oxygen and glucose cannot be delivered to the brain. Blood flow can be compromised by a variety of mechanisms.

Let me tell you when that happens, you life is never the same ... no matter how much you want it to be. I say I survived one, and I did. There is no doubt about that, but when you survive you learn that there is always a cost. My cost was memory, that was my main problem (in my opinion). I don't have slack face, or loss of movement in body parts. But do not expect me to remember numbers, addresses, names, or directions because it simply won't happen. I can repeat numbers but the more numbers in that group the less I can remember them all. Drives me nuts!!!
I am suppose to know my husbands SSN for medical. Let me tell you I have driven Tricare nuts when I go to give them his & finish with mine!!! Then I have to tell them to hold on while I locate my ID. (drives them nuts) Or when a person asks the amount of the AVON order, that is always an interesting event. Usually I just show it to them, because I see the numbers in the order they are, but hey do not come out that way. It's embarrassing, and can be humiliating.
But hey I survived, and I think that I can handle those events as they occur.


Migraines ... Migraine is a medical condition. Most people who suffer from migraines get headaches that can be quite severe. A migraine headache is usually an intense, throbbing pain on one, or sometimes, both sides of the head. Most people with migraine headache feel the pain in the temples or behind one eye or ear, although any part of the head can be involved. Besides pain, migraine also can cause nausea and vomiting and sensitivity to light and sound. Some people also may see spots or flashing lights or have a temporary loss of vision.
Migraine can occur any time of the day, though it often starts in the morning. The pain can last a few hours or up to one or two days. Some people get migraines once or twice a week. Others, only once or twice a year. Most of the time, migraines are not a threat to your overall health. But migraine attacks can interfere with your day-to-day life.

Let's just say I would rather give birth than deal with a migraine. They are painful, disabling, they take away from your life ... and not matter what, there is nothing much you can do until they are over. Each migraine I have is different, there is not a set of "standard symptoms" I get with them, which drives both me & my docs nuts. The worst ones can last for days, and have had them last for weeks ... not my favorite event! With each one the docs 1st worry is "stroke" will it cause another or is this from another. Into the CAT & MRI bed I go... have to get those pics & verify that my brain is not damaged more than the last stroke. Then it is spinal tap time, case the have to check for that (or they think they do). Once that is done I will finally get something to kill the nausea (if I am having it), something for the pain & something to knock me out. Yes, we want me unconscious for this event, my body can recover better if I get the sleep. (Only prob is I don't sleep with that much pain, not matter what they give me.)


Budging Disk in Lower back AND lower neck ... A bulging disk is different from a herniated disk in that a bulging disk typically occurs gradually over time rather than suddenly. A herniated disk is often the result of an injury or trauma to the spine. In the majority of patients who experience a bulging disk, there is no pain unless the disk becomes herniated or protrudes into a nerve.
In many cases, a bulging disk may be diagnosed as a condition secondary to another problem. Because a bulging disk does not always cause pain, it may only be found during a routine or diagnostic imaging test such as magnetic resonance imaging (MRI). Typically, a bulging disk is not a problem unless it begins to cause pain, becomes herniated or ruptures.

This is so much fun because along with all my other lovely issues, this is a pain in the butt to deal with. NOTHING they do will help, and I am not going for surgery on this matter. Nope, nada, no-freaking-way! I take the meds they provide, and suck up the pain on this on. (sounds bad, but fusing my spine is not on my list of things to do EVER)


Arthritis in Lower back & Lower neck ... Arthritis is a joint disorder featuring inflammation. A joint is an area of the body where two different bones meet. A joint functions to move the body parts connected by its bones. Arthritis literally means inflammation of one or more joints.
Arthritis is frequently accompanied by joint pain. Joint pain is referred to as arthralgia.
There are many types of arthritis (over 100 and growing). The types range from those related to wear and tear of cartilage (such as osteoarthritis) to those associated with inflammation resulting from an overactive immune system (such as rheumatoid arthritis). Together, the many types of arthritis make up the most common chronic illness in the United States.

Guess I could have combined the last two, since they are located in the same area. But my docs don't combine them, so why the hades should I?
Actually, this I am still getting use to. Still a lot to learn because I am not quite sure what is casing the pain in my back, the budging disk or the arthritis, time will tell (right?).




Well time is up for me to deal with those issues. I have read a lot & put down what I feel, or think. What I feel is SCREWED (he he he) because each of these alone is a pain, but to deal with all of them plus a few others I left out ... well it is down right interfering with life. My life, my family life ... and that is just simply annoying as hades.
Off to watch a comedy!