It will break your heart

When you are told that you mom has Stage 4 cancer, it definitely will break your heart. But it’s even harder to tell your kids about it … after all, that is their GrandMa.
We have been dealing with this since Aug 2012. It hasn’t gotten any easier. And it won’t.
Now Mom is buying time by taking Chemo. Hoping to give us extra time with her … more for us than for her.
That is what you call a strong woman! A woman to remember & tell about to our kids, grandkids, great-grandkids … an on down the line. Because no matter what, she will be forever in our hearts …

I love you Mom. You are the greatest woman I have ever known!

3 months

My dad called, but he also sent an email. Life is just tearing us a part …

There is no easy way to say this, so I will just lay out the facts as we were told.

They were able to identify the primary source of the cancer as being in her bile duct. It is a very aggressive type of cancer and is in its advanced stages in her liver. As you know it is classified as stage IV liver cancer. This disease carries a very poor survival of less than 3 months. But that is a worse case scenario. Hopefully the chemo will be able to slow the progress of the cancer and give her more time.

Right now the clinic is going thru the paperwork drill with TRICARE to ensure they will pay for everything. Once that is done we will be notified of a date to start her chemo treatments. She will go in for the chemo one day and then back the next day to get IVs to flush her system. This will be repeated the following week and then she will get a weeks break before beginning the cycle all over again.

For now Mom is pretty much in a state of shock and trying to adjust to what she has been told today. Please hold any calls until maybe tomorrow to give her time to compose herself and maybe get some rest. She is sleeping right now, as the news we were given has left her mentally and physically drained.

If any of you want/need to talk to me I will be home the rest of today. I am sorry to have to be the one to tell you this horrible news.

Dad

What I really hate about medical problems

Over the last few years I went from decently healthy to massive medical problems. I guess I had them before but they were not officially diagnosed. Now, it seems like every time I see my dr. I end up with yet another issue to add .
I have or have had:

• Stroke
• fibromyalgia
• arthritis
• bulging disk in my back & neck
• migraines
• ulcers
• depression
• PFO
• low-iron anemia
• blood pressure issues (too low on a normal basis; too blasted high when I get upset)
• stress (far too much according to my doctors)
• panic attacks
• anxiety issues
• slight allergy to the sun (sunscreen doesn’t even help)
• allergic to morphine (so freaking annoying)
• bone growths on the back of both knees
• bladder issues (yep, it even happens to us younger folks)
• sleeping problems
• nerves problems (like not being able to use arms or legs)
• bruising all over body
• loss of hair (do to meds I am on, as well as medical problems)
• acid reflux

LOL it’s bad when you forget a ton of items that you have been diagnosed with. But honestly, it is really bad to be afraid to see your doctor when you know he is going to give you more issues to learn to deal with.

I have told my doctor that one time I would enjoy seeing any of them as long as they provided me with positive news. He just laughed and said I was always an interesting patient … really??? One who DOES NOT want medical problems. One who is now more afraid of seeing my doctors. One who is scared of what they will tell me next. How does that make me “interesting”???? In my opinion, that makes me a fearful patient, definitely not interesting.
But I guess in there case, they are getting to use all the medical training. Which means I am “interesting” to them. I cannot hate them because they are great doctors, and they are always honest with me when I see them. They do not do  give me that bull where they … what’s the correct word or phrase? … treat me like a person who will simply crash from hearing the news they have to give me. They are direct and straight up with me, which I am grateful for. They do not treat me like a porcelain doll that will just crumb if touch wrong. Trust me I have seen doctors treat patients like the were fragile. Treat them as though they would simply crumble from the news they were given.

My parents taught us that you have to accept what the news. You can get upset over it. You can get sad or depressed over it. But you have to learn about what you have. You have to learn to laugh about it, and accept it. Because in the end, there is not much else you can do … except ignore it.
Ignoring your medical problems do not make them go way. It makes your life harder. I recently learned that. I was honest, told people I had a stoke. I told them, but did not let them know just how much I lost when it occurred. I did not tell them, the closest of my friends or even my family, know the actual severity of it. I was embarrassed, and ashamed because I truly did not remember so much about these people who were close to me. I had some feelings where I knew that some of these people were trustworthy and others I was uncomfortable around. Some of the people in my life, I have since learned why. Others I am still learning more about.

Guess the title of this blog should be something else. But honestly, for me it fits. Because I really do hate my medical problems. They cause me to avoid being close to people like I was before. They prevent me from doing a lot of things. Even chores around the house, you know vacuuming … that can take me over an hour to do. Because I get so exhausted from it. Exercising makes me feel amazing, but will put me in bed for a few days. Which really bites because I end up with so much energy, but my body itself crashes. Playing outside with my granddaughter, I can do a little but then have to rest. Hiking, which is so much fun, but afterwards my body crashes if I “over do it.”
”Over doing” is a phrase I really dislike. Today, I was looking for my router disk to set up my computer with our home router (love wireless … gives me more freedom that sitting at a desk). So I was cleaning up the computer area in our home. I got so tired, and I was not even finished cleaning & organizing. I had to stop. Went out back to talk with my son, stood up and the world started spinning around me … my husband had to help me get back inside because I was afraid I was going to collapse. There was NO WAY I was going to have to get my son to carry me inside. That is just way to embarrassing, for me that is.

See, my family seems to understand & accept that I have the medical problems I have quicker than I do. They are patient, but at times they do get a little irritated. After all, it sucks when you cannot take your child to the gym. Or go bike riding, hiking, fishing, swimming … or half a million other things that are fun to do with family. Sure movie nights are great, or board/card games are fun. But what kid wants to do them all the time? Even I get tired of playing them or watching movies/TV shows all them time. I love going hiking with my family. I enjoying going fishing with them. But even they know that “over doing it” prevents me from doing other things with them. And yes, I can “over do it” playing board/card games.

I guess, in many ways, I am one of the luckiest people on the planet. Simply because of the understanding, compassion, love and support that I received from my family. I really helps me so much that they do understand, even with they get irritated. Because without them, my life would be so much harder.
So while I truly hate my medical problems, I have the greatest family when it comes down to dealing with all the issues that seem to find their way to me.

I am learning to accept all my medical problems, and I will laugh at them. After all, if you do not find a way to laugh … you will live in misery. I prefer happiness, love, enjoyment. Misery can go find someone else. I just wish some people understood the concept of why you should laugh … it makes accepting so much easier.

Yesterday I lost my GrandDad … but he’s still alive

There was a post on FB where my Mom’s dad (he use to be my GrandDad) told Mom not to worry about the blood sugar and the rest of her medical problems. He told her that she has to stop thinking about herself, to stop being “me-centered” and that she need to start thinking about others.
The problem with this is my Mom was posting what was going on, but joking about it. She believes that working through hard issues should require laughter & joking. She has been working with handling a broken foot, blood pressure issues & pulse issues, and recently diabetes. She has joked about these, but keep her family involved. Sadly, her father did not see it that way.
I posted a tactful, respectful, and polite post explaining this to him. I told him that we were raised to handle situations, but to also find a way to laugh at them. Which has helped us eventually deal with them. Plus it keeps us from being over stressed. My Dad taught my Mom, and they both taught my brothers & I. I even told him that I loved him.

Yesterday, just before 5:14PM (the time my husband called after the event) I walked into his home. He was ranting to his son Chris, and probably Karyl (who cause so many freaking problems). Chris sound like he was trying to reason with him, by telling him we basically do things differently and did not mean to upset him. Well, Mom & Dad stopped, but I went straight to him. I was going to give him a hug, because I know he has been going through so much with the death of GrandAnn (his wife & my grandmother).
The second he saw me, he started in on how he was not going to listen to any more about the FB post. I tried to interrupt by telling him I just wanted to give him a hug. But he kept ranting and cursing at me … yes, the man who is suppose to be my grandfather decided to curse me up one side & down the other plus he told me it was MY fault (????how) that he was back on some medication, that he was off of. In this process, he told me to leave his home. I spun, crying by then (viewed by Chris, who did nothing & my parents) and left the house. He was still yelling at me, treating me like I was nothing. Like I had no right to say anything that he did not agree with or like (basically kiss his ass). When I got close to the door I loudly stated “Good-bye GrandDad.” (he wears hearing aides but they do not work) I walked straight out, refusing to be talked to in that manner.(creating on hades of a migraine … should have told him “Thanks, for the I migraine BECAUSE I run the risk of another STROKE each time I go through one.” That would have only pissed him off even more!)
When he verbally attacked me, and when I was facing my Mom, I saw that he tore her apart by attacking me. Each word out of his mouth shredded her heart; her love for him, her respect for him, the compassion she had for him … everything a father should mean to a child simply died.
I light up a cig and began to walk back to Hutch, but as soon as I hit the stop sign, I started to go back, figured my parents would be worried. Then I figured my parents could pick me up along the way. Instead, they came out of the house, I headed back to the car.
During this time you can hear my Mom’s father yelling, and I was out in the road. Plus you can here Karyl yelling. Not once did I hear my parents raise there voices. One the way out my Dad said “Jesus F*cking Christ” to which Karyl threated to basically beat his ass … what a joke that was. (I would have pulled up a chair, and at pop corn while my Dad (who does not hit a woman) would have defended himself & made her suffer.)
Mom was crying when she got to the car, and had been crying inside the house as well. I do not know what he said to her, but she began crying when she saw him attack me.

But I am proud of myself. Instead of stooping to their level, I walked away. I refused to listen to a person (no matter how old they are or how much respect they believe they should have) insult, degrade, curse, disrespect me or treat me like I was nothing. I have been through hades and back in my life, but I have always managed to get through it. I have worked hard to be a decent (good) person.
But in the end, he tore my heart apart. I have been in that person’s life for 39 years. I am his 1st grandchild, and his 1st granddaughter. I am the child of his daughter, who has been in his life for 59 years. I have gone out of my way to visit him over the last 3 months (yep, I have been in this area for 3 months, leaving my husband to care for our children … cause Mom has to have someone here for her. Dad works, and cannot take this time off … or he does not get paid)
I cried all the way back to my parents house. I tried to stop, because it was hurting my Mom. She kept getting more and more upset & worried because of how much I was crying. I tried to stop, or cover my mouth so she could not hear me. It just did not work because of the pain he caused in me, the tears simply kept coming. The only time I could not completely bawl my head off, was when my husband called. I got to talk to my granddaughter & him. He knew something was wrong, but I told him I just could not discuss it at this time (what I did not tell him was that it would have had me crying my eyes out worse than I already had been). But he knew something was wrong … I love him so much for understanding! I finally began to stop crying because my Mom kept apologizing for this!!! She did nothing wrong, but she was apologizing because she NEVER wanted me to see this. (I guess my brothers have seen it, but I do not know about me … when I had my stroke it took away a lot of my memories) I kept telling her that it was NOT her fault, that I NEED to see this because this is the true individual who claimed to love me. I NEEDED to know the type of person he was, as well as who Karyl was (but had a good idea, since she has not talked to me the ENTIRE time I have been here … sweet actions for an aunt, huh?). I told her I NEED to know the truth about these people, because I have children and a granddaughter … who NEVER need to be put through that type of touchier, heart break, pain or treated like they are nothing.
I gave my Mom a hug, and then went to the room I am staying in. I changed into my PJ’s. I put Mom’s extra ash tray, my book, my Puff’s kleenex, my cigs & lighter on the bed. I had, also, put the MP3 player (my son gave me) plus connection cord to computer, thumb-drive, my camera, my purse & my laptop … all on the bed. I went to refill my glass of sweet DECAF tea, took my evening pills.I went down stairs because I heard my parents talking, about the situation & me. I told Mom I would be ok, that I was hurt, disappointed & angry. That I did not understand why this was such an issue with her father. Then Mom said she was going to return the glucose monitor that her father gave her. I  After a bit, I went to refill my tea, and Dad asked me if I wanted to go get a microwave for Mom (since theirs is not working). I said sure, I needed to pic up more cigs & sunflower seeds … he laughed and told me sorry he forgot to get them. I went to change back into my clothes, got ready to go & went.
Dad talked to me a bit about this entire situation. He told me this is how they usually are. EVEN he apologized, saying I did NOT need to see this. I told him, as I told my Mom, that I NEEDED to see this. Finally we got to the store. He got the microwave, and I got my sunflower seeds (cigs are too expensive there). He told me we would stop by gas station so I can get them. And I am so proud of my Dad. He was so supportive with Mom & me, he was understanding & compassionate about all of this. He did not even get upset that I had come close to chain smoking. But he got upset with my Mom’s family for causing her the stress to basically be chain smoking. We got my cigs, and came back home. He brought in new microwave, I told Mom to come up to see the huge thing and she hobbled up the stairs with her foot that is BROKEN in 5 (yes, 5) places. Instead of being happy, she look like the world had actually started ending. She watched him set it up, filled up her drink and then headed back downstairs, I told her she got the perfect housewife’s gift … a dozen peach roses, stuffed teddy bear & a microwave. She said she was grateful but was so hurt she could not be joyful over it.
I went downstairs. I sat beside her, told her that Dad brought home a dozen peach roses & stuffed teddy bear (which is adorable!!) earlier today to show her that no matter what he was there for her & loved her dearly. Then he took a bit of extra time to get the microwave. She told me she could not get happy because she could not believe what happened at her father’s home. That she was so devastated & her heart torn to pieces that she could not even find a smile. I told her that no matter what, she could not let them take the joy of the love & compassion Dad was giving her. (My Dad did not get upset, because he understood the pain she was going through.) She, also, apologized (yes, again) to me, that she was sorry that I had to go through that & actually see that. She was, also, worried about her grandchildren & great granddaughter because she would NEVER allow them to go through this. She said that they will NOT be allowed around her side of the family, but that would (also) hurt them because they would not know those people. NOT KNOW THOSE PEOPLE, hello … if they would tear me apart, then they would go after my children, my granddaughter, my niece & nephews. There was NO WAY I was going to allow them around those people. She cried, I cried & we hugged each other. I tried so hard to comfort her, but it was like hitting a wall … she was so upset, angry, disappointed, & devastated. She could not believe that her father would verbally attack me over something that was not disrespectful, rude, obnoxious, harsh … or any negative word you can come up with. She could not believe he would attack his own granddaughter, her daughter. She could not believe that he would take offense in what was said, because it was not attacking him in any way … it was just an explanation (plain & simple). She could not believe what he said to her, or what they did not my Dad. I have never seen her this torn up over what her family has done to her (and they have pulled some harsh things on her). I told her I would be ok, that my children, granddaughter, niece & nephews would be ok … but she believes they will miss out on knowing that family. No, they will miss out on the pain they will cause … something I will NEVER allow to happen.
I went up stairs, changed back into my PJ’s, then I texted my husband to see if he could talk. My granddaughter was still up, so I just texted him what happened, a brief note. While I was doing that he called, which I rejected because I wanted him to read what I said, then call me. Which my simply amazing husband did.
By then I was getting trash ready to take out. So, bundled up to go outside to put trash in large can. I was talking to him about this … trying so hard not to cry, but did. I had to try to stop because I had to go back inside to get my drink, tissue box, cigs & lighter. I asked my husband several times how to handle this. I told him that my Dad, my GrandPa, my brothers & he would never do this. I told him that his family never treated me in this fashion, that they should me love. I ended up using 1/4 a box of tissue. (I had to stop talking at one point, because Dad had to leave to go train the new guy at work.) While I was talking to him, I began picking up all the sticks in the yard, smoking like a blasted chimney (which I definitely did not need to do). After that, I quietly went back inside to get gloves because my fingers were FROZEN, and I had to use the bathroom. (Horrid mistake, putting hand with arthritis into hot water … my head spun and the pain was horrid) Then I went back out, I told my husband that I should not have asked him how to handle this situation (several times) because he has NEVER had to go through this. (Yes, I even double check on that.) I told him I was sick of bawling, it made me feel like a wimp. So, my wonderful husband put my granddaughter on the phone … she had me smiling after a few minutes. I got to talk to her, and listen to her new words (plus tons of jibber jabber). Then we talked about how our boys were doing, and I was so impressed (they are amazing sons). I then went inside, talking to my husband and granddaughter, and began cleaning my Mom’s kitchen. (cleaning is something I do when I am really upset. I talked to him for almost 2 1/2 hours (if not more). By just about 1am, I was done with Mom’s kitchen but I still have to vacuum, which I will do later today because Dad came home … and he needs his rest. (I did get to talk to my daughter for a short time)

Since then I have pretty much been in “my” room. I was reading earlier while computer was downloading programs I wanted. A couple times I went to see Mom, having her tell me to sleep – as if that will happen. Currently, with the emotions I am dealing with plus the migraine & tense back muscles … sleep I want, but I cannot reach.

I would to have an answer to how to handle this … but there is not one out there. After all, don’t most grandkids love their grandparents? Right now, I just want today to disappear, just like it never happened. But with all reason, I really NEEDED to see who these people truly are … and Mom has 2 sisters & 2 brothers who were not here, which means we shall have hades to pay. I have decided that if they show up on my parents property, I am gonna kick them off. If that does not work, I will call police to handle it. I truly want NOTHING to do with anything they have to say on this situation.
I buried my GrandAnn Jan 30th. Today, I lost my grandfather … by his choice. He told me to leave his home, and will never understand that people have different personalities. I have one grandfather left, my GrandPa (who would NEVER do this). I have NEVER felt like an outcast when I am around them.

So now I am gonna read my book, & try to relax. Later today or sometime this coming week, I am gonna try figure out a way to overcome this situation … and find away to get over the pain it has caused (ha ha de freaking ha). I have to watch clock so I can take meds for the migraine, it just will not go away. Now to relax, so my head will clear because I really need a clear head to get through this.

What a wonder freaking day in the world …

Life’s good & bad times

original post date: 10/20/10

There are always good & bad times in all lives. Hey, it can be from the littlest things to the heartbreaking one. Kissing that “boo boo” because it hurts so much. Or holding someone when they cry their eyes out over the loss that just occurred. Helping a person when they have hit rock bottom. Smiling at the cutest little thing your child has done. Swinging around in hugging circles because you are so excited but don't have the words to express it. Laughing so hard you are crying or crying over the most amazing event. That is just simply life. We can say we just can’t take it any more or just aren’t getting enough. Either way, it is what is occurring in the world on a regular basis.

No, I don’t mean we should all be harsh about what is going on in others lives, or that we should compare their lives to ours for more understanding … that would make us all a bit harsh or really over-stressed. No, I am looking at this from an “one person view.” Because to be honest, I quit trying to understand others when I was back in high school. Have this slight memory where I am talking to the counselor and telling her that people are just not worth the effort to completely understand. Oh I have some sight on people, even I am not that self-centered, because otherwise I would be the hobbit (that I once considered becoming).

In some ways, what my really extended family does bothers me. BUT (yep there is always one of those, isn’t there?) when you haven’t had a person directly involved in your life on a regular basis, it pretty much makes it a mute point when you become an adult. Right? I don’t sit down and write everyone a cheery little email or letter about how things are going, but neither do I receive them. I have tried in the past to do the letter writing, let’s just say “what a joke” and move on.
Each of us was raised in a different environment, a different life style, and differently. Yes we were all taught the basics, but other than that … not much else was the same. Do I regret that, nope. Am I angry about it, nope. There are a ton of no’s I could list, but that really doesn’t help too much or make anyone feel all that great. So another move on.

Going from being able to do everything to “*&^*%(&)(*” limited, it really takes a blow to you. When you are use to being able to do something like grocery shop alone, it really sucks when you have to have someone with you to complete it. When you LOVE driving, yet you find yourself limited to short drives here and there, it can be devastating. Moving around with out the fear of getting bruised or hurt, is simply a blessing (more than you can imagine) to being worried because people tend to get the wrong idea when you are really bruised & in pain. Or my favorite, having just one doc and expanding to well over 5 well before you even turn 40 … well, that can really bring you down. Recovering from medical issues in your life, only to have some one use against you … sweet when someone tries to do it. (stupid when they look like a complete a$$!)
It comes down to really not looking like things are going to well for you. Today I told my dad “when I am your age I hope to be as healthy as you are, because you are out doing me now.” He laughed, teased me I have to get there 1st. Sad part is, I do have to get here 1st. Will I be watching my granddaughter and her cousins at that age or will they be wishing I was. Tomorrow is a day I cannot predict, nor do I want to. I enjoy the unpredictability of life. Of how it can surprise us with each twist & turn of the way to the end … yes, even our lives come to an end. But our memories don’t, that is the most interesting part. To be the story told your ever so great grandchildren. I am sure all of us have those tales that will be told, even if we don’t see them … someone does. That really counts, to be a positive memory.
I have taken those good & bad days on with full force. Enjoying the good, and fighting though the bad. Trying to be there for those in my life when they have them, as well. (Not always an easy task … ) I enjoy laughing until I cry, and have done it more than a few times. I enjoy watching my children do the silliest things, and those nerve racking ones as well. I have kissed many “boo boo” and will probably kiss a few more. I try to teach my children that family isn’t just those around you, there are others who are just a phone call, letter, email or text message away.

The one thing I really hope my children understand is that those bad days are just as important as the good. They help shape us. Give us a view on life in a unique, and entirely personal way. The good give us the joy, happiness, and all the emotions that occur. The bad, we know how we feel on those days. That is what keeps us balanced. All 100% cheerful days, and what all would we have learned? All 100% sad days, and were mankind would be won’t be such a great place to live in. A balance between the two is always the best way to go, and hope for.

I am not even 40 yet…

original post date: 8/12/2010

my spine & neck are compared to a freaking 80+ yr olds!!! I was fuming when my neurologist informed me of this.  As well as a few of my other docs, a total of 3.
When you are enjoying life, it really sucks to be informed that your body is not where it actually should be.

Not only was I informed that my neck & spine were too far advanced with their issues, but my other medical issues are effected by this. Oh that was just freaking peachy to hear … yea for me.

Oh well … time to stress on something I can change. Yes, my boys just took off when I stated that!!! ;-)

The question of the day ....

original post date: 6/24/2010

I would love to have a week where I can do things & not crash. Before it wasn't too bad, I could do a bit but would crash for a say or two. But it has gradually gotten worse over the years.
Last month I was hospitalized because I was anemic and my heart rate was 41, with a dangerously low blood pressure. I scared everyone who loves me, and today they are still extremely worried.
5 or 6 years ago, this wouldn't have happened. Yes I was younger, but still I was able to do pretty much anything I wanted. This little stunt made sure I didn't go to the family reunion. And it pretty much has be locked in one area, travel is out of the question for me right now, at least with me driving.

I keep hearing from my docs "once this is done, it will you will be ok." Only problem is I have heard this over & over for the last few years. I have agreed to do what they tell me needs done, only to have another medical issue occur. Part of me wonders if I didn't do what they suggested if I would be going through all of this ... and that is disturbing.

Now I have to decide if I get a hysterectomy done, as well have the spine in my neck fused together. Yea that's just the easiest thing to decide isn't it? Or it would be unless you were dealing with me & all the blasted issues I have going on in my body. Heck only one issue laid me out for 2 days ... all I did was help tear out a small part of carpet from my own freaking room. 2 days later, I am still feeling the pain, and exhaustion. Let's not even discuss the problems my back says it is having ... it's very unhappy with me right now & letting me know about it.

The question is do I follow what my doc suggest or to I take a chance & end up screwed from not trying?